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What I Wish I Knew Before Becoming a SEND Parent

Parenting always comes with surprises. But parenting a neurodivergent child — whether they’re autistic, have ADHD, dyslexia, PDA, or other neurological differences — is a unique, beautiful, and often challenging journey. No handbook could have fully prepared me, but there are things I deeply wish I had known from the start.

Whether you’re newly navigating a diagnosis or deep in the trenches of SEND parenting, this post is for you.

 

1. Neurodivergence Isn’t a Deficit — It’s a Difference

Your child’s brain processes the world in a beautifully unique way. This isn’t something to “fix” — it’s something to understand and support. They may communicate, feel, and learn differently. And that difference is valid.

 

2. The Idea of “Normal” Is a Myth

Milestones, social skills, learning styles — throw the rulebook out. Your child might take a different path, and that path is no less meaningful. Once you let go of comparison, a whole new world opens up.

 

3. Diagnosis Can Be a Doorway — But Not a Guarantee

Getting a diagnosis can bring relief, clarity, and access to support. But it’s not a magic fix. You may still have to fight for accommodations, services, or understanding — both in school and in wider society.

 

4. Parenting Advice Needs a Rewrite

Many traditional parenting methods simply don’t work for neurodivergent kids. “Just take away the iPad,” “They need more discipline,” or “They’ll grow out of it” can be harmful — not helpful. What works is connection, predictability, and compassion.

 

5. Advocacy Becomes a Daily Role

You’ll learn to write firm emails, attend exhausting meetings, quote laws, and explain your child’s needs over and over again. You’ll become fluent in acronyms: EHCPs, IEPs, SALT, CAMHS… And yes, it’s exhausting.

 

6. The School System Often Isn’t Designed for Neurodivergent Kids

Even well-meaning teachers and schools may fall short without the right training or resources. You may need to challenge decisions, push for adjustments, or even consider alternative education options — and that’s okay.

 

7. Siblings May Feel Overlooked

It’s easy to unintentionally focus all your energy on the child with additional needs. Remember, neurotypical siblings also need support, attention, and a space to share their feelings — including the hard ones.

 

8. You Might Grieve — And That Doesn’t Make You a Bad Parent

Grieving doesn’t mean you’re grieving your child — you’re grieving the parenting journey you thought you’d have. This grief can coexist with fierce love and pride.

 

9. Your Support Network May Shift

Some friends or family may not understand, or may judge your parenting. Others will step up in unexpected ways. You’ll find your people — often in online groups, local SEND forums, or simply in those walking the same road.

 

10. Guilt Will Knock at the Door — Don’t Let It Move In

Guilt about missing signs, getting frustrated, taking breaks — it’s all too common. But guilt doesn’t help you or your child. Self-compassion does.

 

11. You’ll Become a Researcher, Therapist, and Teacher

You’ll read books, watch webinars, listen to podcasts — all to understand your child better. You’ll become their interpreter, advocate, and safe space.

 

12. Your Child’s Wins May Look Different — and That’s Okay

Progress might be a full sentence, a regulated car journey, or making eye contact. Don’t wait for the big milestones — celebrate every tiny victory.

 

13. Meltdowns Aren’t Tantrums — They’re Overwhelm

Neurodivergent children may struggle with sensory overload, transitions, or emotional regulation. What looks like “bad behavior” is often a nervous system in distress. Compassion is key.

 

14. Self-Care Isn’t Optional — It’s Essential

You can’t pour from an empty cup. Burnout is common among SEND parents. Whether it’s a walk, therapy, coffee with a friend, or just 10 minutes of quiet — prioritize your own well-being too.

 

15. Your Child Will Teach You More Than Any Book Ever Could

They’ll teach you about patience, creativity, resilience, and love in its purest form. You’ll grow, shift, and reimagine life — not in spite of them, but because of them.

 

Final Thoughts

Being a parent to a neurodivergent child can feel isolating, overwhelming, and at times, unfair. But it’s also powerful, transformative, and deeply meaningful. You are not alone. You are enough. And your child — in all their uniqueness — is more than enough.

 

💬 Want to connect with other neurodivergent families or get support navigating the system?

Facebook – has lots of community groups for parents in the same situation as you!

Community- reach out to your local community to see if they run send parenting support groups.

 

There are resources out there that get it! USE THEM!

Remember to be kind to yourself.

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